Channel 4 News
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Families fight for life-extending Muscular Dystrophy drug
Posted
May 28, 2025
Views
4,475
Likes
44
Comments
16
Engagement
1.34%
May 28, 2025
4,475
44
16
1.34%
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5:04Now PlayingWhen it was approved last year it was heralded as a breakthrough treatment in the fight against a rare and incurable muscle wasting disease. Givinostat slows the progression of Duchenne Muscular Dystrophy, a genetic condition which mainly affects young boys.
The drug was offered to hospital trusts for free under an early access programme. But to the dismay of parents, many trusts in England are refusing to make it available on cost grounds.
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