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How My Kids’ Rare Disease Drove Me To Find A Cure
Posted
July 1, 2026
Views
185
Likes
12
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2
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7.57%
July 1, 2026
185
12
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7.57%
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44:00Now PlayingJohn Crowley does not stop at bad news. His two young children, Megan and Patrick, were babies when they were diagnosed with Pompe disease, a rare and fatal form of muscular dystrophy. Crowley changed his entire life in a race against the clock to find a treatment for his kids and reinvented his career at the same time. He has built two biotech companies focused on rare diseases that were later acquired by larger pharmaceuticals and today is CEO of the industry lobbying group, BIO.
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Produced by: Katie Kramer, Brad Quick, Kelly Lin
Additional Production Support: Leanne Miller, Anna Rodin
Edited by: John Lazration
Camera: Dave Grogan, Oscar Molina, Tara McCurrie, Alex Bedoya
Audio: Everett Wong
Graphics by: Jason Reginato, Lindsey Jacobson, Emily Park
Additional Materials: BIO, John Crowley, E! News, Getty Images, Becky Quick
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