June 6, 2016
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1:22Now PlayingEvan Fasciano is fighting a tough battle with an extremely rare genetic disorder. His parents explain Evan suffers from the severest form of a skin disease where it grows at 10 times faster than normal leaving him with scales across his entire body. He must bath twice a day and can't sweat. But despite Evan's condition, he stays positive and most importantly happy. #InsideEdition
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