Inside Edition
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Boy With Extremely Rare Genetic Condition Hears Mom's Voice For First Time
Posted
January 16, 2017
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January 16, 2017
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1:27Now PlayingThis was the moment little Gavin heard his mother's voice for the first time after undergoing surgery for cochlear implants. Jennifer Arroyo says she and her son have been on a long journey. First, they had to figure out why Gavin was deaf and almost blind and why he was always getting sick. A genetic test showed he had a rare condition called USP9X. Since so little is known about the disease, rather than focus on what he can't do, this mom is always looking forward with hope. #InsideEdition
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