January 23, 2017
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0:59Now PlayingMore from Inside Edition
Three-week-old Kahleel Clark-Smith was born with a condition dubbed the "worst disease you've never heard of," already causing him to lose 60 percent of his skin. Kahleel's aunt says most babies with Epidermolysis Bullosa don't live past the age of one. It's an incurable genetic disorder that causes skin to be extremely fragile and often blister, leaving raw sores prone to infection. Kahleel has since developed a staph infection, which he's recovering from, and has been fighting fevers on and off. #InsideEdition
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