Inside Edition
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4-Year-Old Living With One of the Rarest Disorders in the World
Posted
April 6, 2024
Views
225,875
Likes
3,377
Comments
231
Engagement
1.60%
April 6, 2024
225,875
3,377
231
1.60%
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10:26Now PlayingAmanda Burritt’s 4-year-old daughter Emma is living with one of the rarest conditions in the world. She noticed something was different about her daughter at around 6 months old when she wasn’t hitting her milestones. After months of testing, Emma was diagnosed with KIF1A Associated Neurological Disorder, also known as KAND. “It was devastating. It turned our entire world upside down. There are only roughly 500 diagnosed with KAND worldwide,” Amanda told Inside Edition Digital’s Andrea Swindall.
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