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One brother approved, one denied for same gene therapy
Posted
August 28, 2025
Views
88,842
Likes
1,365
Comments
529
Engagement
2.13%
August 28, 2025
88,842
1,365
529
2.13%
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3:24Now PlayingThe two boys both have Duchenne Muscular Dystrophy, a genetic disorder that typically has children wheelchair bound by the age of 12. Average life expectancy is less than 30. But there is a gene therapy that may slow or even halt the progress of the disease. Insurance approved one brother for the treatment, but then when the other applied for coverage a little while later, he was denied. NBC News’ Maggie Vespa reports for the series “The Cost of Denial.”
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