Sky News
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Parent says lack of support is 'unsustainable' for child with life-limiting illness
Posted
April 25, 2023
Views
2,256
Likes
32
Comments
7
Engagement
1.73%
April 25, 2023
2,256
32
7
1.73%
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2:39Now PlayingThe exhausted mother of a child with a life-limiting condition who has been denied specialist palliative care at home has told Sky News her situation is "unsustainable".
Emily Marsden is a full-time carer for her eight-year-old daughter Daisy who was born with Rett Syndrome, a rare genetic condition, that requires round-the-clock specialist nursing care.
#pallitative #specialistcare #fulltimecarer
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