September 11, 2019
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1:08
3:16Now PlayingThese moms and dads have spent years tirelessly fighting for their kids to have this moment.
RELATED VIDEO » Conjoined twins have lifesaving operation
These moms and dads have spent years going back and forth with each other over email and messages, trying to find a treatment for their kids with the rare neurological disorder called KIF1A. All their tireless work has led to this moment.
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