Eli's battle with Spinal Muscular Atrophy
August 15, 2016
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2:31Now PlayingEli's battle with Spinal Muscular Atrophy
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as posted by the channelSTAND UP: I’m Natalia Hepworth in Ammon where one young boy is suffering from a terminal illness. Doctors said he wouldn’t live to see his second birthday. The now 3 and a half year old, and his family are fighting for his survival.
SOT: “I accept the diagnosis, but not his prognosis. I don’t believe that we should just take him home to die,” Eli’s father, Joseph Price said.
VO: Eli Price was born in Germany back in 2013 when his father Joseph Price was working for the military. To doctors he seemed to be a normal and healthy baby.
SOT: “The moment that they laid him in Windy’s chest after he was born, she felt like something wasn’t really quite right but she couldn’t’ t really pin point it,” Joesph Price said.
VO: After a few weeks, Windy and Joseph Price noticed their baby boy wasn’t developing basic motor skills.
SOT: “When he wasn’t meeting those milestones we started getting a little concerned and we went and talked to a doctor,” Joseph Price said. “Initially the German pediatrician said there’s nothing to be concerned about He’s developing a little slow he should be fine, but weren’t so sure.”
VO: Windy and Joseph weren’t sold, and continued to seek professional medical help for their son. When Eli was about 3 months old doctors discovered he had a rare terminal illness, Spinal Muscular Atrophy.
SOT: “The German’s told us, ‘Take him home. Love him while you can. He might make it a year,” Joseph Price said.
VO: Spinal Muscular Atrophy or SMA affects the motor nerve cells and the spinal cord. People suffering from SMA can loose the ability to walk, eat, or breathe.
SOT: “It affects pretty much every muscle in his body,” Joseph Price said. “Eli will never sit up. He will never walk.”
VO: Eventually Eli’s family made it back to the United States and got him the medical care he needed. Eli can’t sit up and lies in a stroller. Daily he requires multiple machines that monitor his heart, supplement oxygen, and provides him food through a gastrostomy tube. Each day is a struggle, but the Price’s do all they can to help Eli live a full life.
SOT: “We’re enjoying the time we have with Eli and we want to get him out to see the world. Wherever we can we take trips around here locally. That’s the great thing about living in Idaho Falls is that we’ve got good access to the Tetons to Yellowstone,” Joseph Price said.
STAND UP: To learn more about Eli’s condition and how you can help visit his Facebook page, Eli’s Battle with SMA. In Ammon, I’m Natalia Hepworth, EastIdahoNews.com
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